What is MSUD? It is a very rare, inherited condition called Maple Syrup Urine Disease. All over the world, babies are born that cannot metabolize protein. It wasn’t until physicians named the disease after the signature sweet smell of urine in a baby’s diaper that they started saving lives! Today, babies are screened and survive, but they face many challenges. The MSUD Family Support Group’s mission is to provide education, research, and advocacy with our goal to someday FIND A CURE!
The Goals of the MSUD Family Support Group are:
Educate, Connect, and Engage Families:
We provide opportunities for support and personal contact for those with MSUD, their families, and professionals. We connect and engage through our newsletter, eblasts, symposia, and social media.
Research
We strive to improve the lives of those with MSUD by promoting and supporting research that may lead to better treatments and a cure for MSUD.
Advocacy
We improve the lives of those with MSUD by fostering awareness and supporting the enactment of public policies on the State and Federal levels which will further research and improve access to care for individuals with MSUD.
For more information, please visit https://msud-support.org/.